The Hidden No More Foundation’s mission is to empower and enable patients and families facing Huntington's disease, to step out of the shadows of shame, stigma and fear. Huntington's is often described as the “harshest affliction known to mankind,” but unlike other diseases, the daily suffering it inflicts, is uniquely compounded by the fact that the vast majority of those families carrying the HD gene, feel compelled to hide that reality.
The first Hidden No More event took place on 30 June 2010, when more than a year of campaigning and fundraising by Sabine in partnership with Sir Michael Rawlins culminated in the launch of an All Party Parliamentary Group for Huntington's disease in the UK Parliament. Chaired by Lord Walton of Detchant and supported by more than 40 MPs and Lords, the purpose of the Group was to raise the profile of Huntington's disease and establish a better methodology for estimating its prevalence, and thus lead to allocation of more appropriate resources for care and research. Within twenty-four months, the research commissioned showed that the disease was indeed more than twice as common as previously estimated.
Then, on May 18, 2017, Charles Sabine OBE became the first person with Huntington's disease to meet publicly with a world leader when Pope Francis said to a Global TV audience and an audience of 1,800, the largest number of people ever gathered in relation to Huntington's disease:
“Today, however, we are here because we want to say to ourselves and all the world: ‘HIDDEN NO MORE!’, ‘OCULTA NUNCA MAS!’, ‘MAI PIU NASCOSTA!’. It is not simply a slogan, so much as a commitment that we all must foster.”
— Pope Francis
The events of that day, and the extraordinary journey of Huntington's families to Rome from some of the poorest and most remote places on earth, was made into a film Dancing at the Vatican, released on Amazon and YouTube in six languages. Dancing at the Vatican premiered in Hollywood, California in July 2019. The documentary's European premiere took place at the British Academy of Film and Television Arts (BAFTA), in February, 2020.