Media
Huntington’s Disease campaigner gets OBE and says you can fight the condition. Read.
Gene editing: Is era of designer humans getting closer? Read.
Pope to meet world’s largest gathering of people with Huntington’s disease. Read.
Charles Sabine OBE - His battle. Read.
Huntington’s disease: the Pope steps in to raise awareness. Read.
Should we use gene editing to produce disease-free babies? A scientist who helped discover CRISPR weighs in. Read.
How close are we to a cure for Huntington’s? Read.
Stem Cell Opponents? Give Me Your Best Shot. PDF.
If you haven't heard of Huntington's Disease, imagine "a combination of Alzheimer’s, Parkinson’s, schizophrenia and cancer all rolled into one". Read.
A profile of Charles Sabine OBE. Read.
Charles Sabine OBE, HD advocate interviewed on USA TV Show The Doctors. Watch.
Charles Sabine awarded OBE for improving the lives of Huntington’s families everywhere. Read.
Genetic Testing Reveals Devastating Illness. Read Or Listen.
“So Brave To Speak His Terrible Fate”. Read.
Princess Anne Hosts First Investiture Ceremony Since Queen Elizabeth's Death at Buckingham Palace. Read.
Our inspiration: people impacted by Huntington’s disease. Read.
My 15-year global search to cure the disease that’s ravaged me and my family. Read.
Charles Sabine OBE: Huntington's disease, Gene Therapy, and Hope. Listen.
BBC Radio 4 - The Inside Health insiders' guide to gene silencing therapies, could they change medicine? Listen.
“As Charles Sabine, a victim of Huntington’s disease, put it, ‘Anyone who has to actually face the reality of one of these diseases is not going to have a remote compunction about thinking that there is any moral issue at all.’ Who are we to tell him otherwise?” Excerpted from the book A Crack in Creation: Gene Editing and the Unthinkable Power to Control Evolution by Jennifer A. Doudna and Samuel H. Sternberg. Buy.
Resources
Huntington’s Disease Association are here to help people living with Huntington's disease to live a better life. We improve care and support services for people with Huntington's disease, educate families and professionals, and champion people's rights. Visit.
HDBuzz features Huntington’s disease research news in plain language, written by scientists, for the global HD community. Sabine is Consulting Publisher to the Huntington's disease research news web platform HDBuzz, founded by Dr Jeff Carroll and Dr Ed Wild. Visit.
The Huntington’s Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. Visit.
Scottish Huntington’s Association is a Scottish charity established by families living with Huntington’s disease (HD) in the late 1980s. Visit.
Huntington Société Of Canada: Supporting those facing Huntington’s disease. Visit.
The Huntington’s Disease Youth Organization is non-profit set up to provide support and education to young people (aged up to 35) impacted by Huntington’s disease (HD) around the world. Visit.
CHDI’s mission is to rapidly develop therapeutics that slow the progress of Huntington’s disease. Visit.